Bright Eyes
My beautiful boy babbled on time, he sat up,
he walked, showing good signs. His eyes were bright and clear, his smile
so dear. Suddenly things began to change . . . Struggling to speak and
the brightness began to wane. His fixation on things grew and his focus
was gone, I watched him slipping away into a fog. Still funny and
cuddly and makes my days sunny . . . . It's called Autism and it's difficult to
explain.
This causes all sorts of delays in his brain. He's still smart as a whip but it's harder to express. Working through all this sometimes turns out to be quite a mess. Not seeing him advance like he should; holding on to the knowledge and wishing that he could. Loving him and teaching him all that we have . . . We will conquer this monster hand in hand. (unknown author)
This causes all sorts of delays in his brain. He's still smart as a whip but it's harder to express. Working through all this sometimes turns out to be quite a mess. Not seeing him advance like he should; holding on to the knowledge and wishing that he could. Loving him and teaching him all that we have . . . We will conquer this monster hand in hand. (unknown author)
I found this poem while on the web, I'm constantly looking for every bit of
information and research I can find. This story falls too close to my own
personal experience with my oldest son. Some people are scared of autism
only because they do not understand what it is. Unfortunately more
children everyday are being diagnosed with autism, even worse is there's too
many different levels....that's why a diagnosis is labeled Autism Spectrum
Disorder. We need to help others understand. I used to get a lot of
strange looks from people whenever my son is acting out from discouragement and
frustration. After enough of those looks of “can’t you control or
discipline your child?” I did something. I wouldn't hurry out of
the store or parking lot anymore like I had in the past. Instead I approached the glaring onlooker and
ever so sweetly explained "my son is autistic and unable to
speak". At one point I even found business cards on the web to hand
out to friends, family, neighbors, and anybody I came across just to help
increase autism awareness with this message:
If you are puzzled by my child's
behavior, it is not their boldness or lack of discipline. My child is Autistic. A person with
autism can often behave in an unpredictable manner. They sometimes find
it hard to cope with many everyday situations and are quite simply doing the
best they can. Please be patient.
April is Autism awareness month, but any
time is a good time to help spread awareness. This not only will help
inform others of the disorder, but think how maybe your son/daughter might be
approached differently and maybe made more comfortable in a variety of social
settings! We all want the best for our children in life, whether or not
they're autistic, right? God asks the angels above to give these children
to certain parents for a reason; he wouldn't if he thought we couldn’t
handle it. Remember....children are a blessed gift from above.
My little green eyed angel! |
My little blue eyed angel! |
Heather! I love the idea of having cards to hand out when people are being judgemental and confused about the situation. My son has Sensory Processing Disorder ( and looks so much like your blue eyed guy!) and there are definitely times when I wish I could share the journey we are on with just one look. This is a great little story and a wonderful reminder to hold our judgements, as we do not know what is going on in others' lives:)
ReplyDeleteThanks Kim! If there's one thing my kids have taught me it is more patience and understanding, no matter what the situation. When it comes to autism it's a necessity :)
Delete